Month: September 2014

Do you remember The Day You Got Your Diagnosis?

  Have you ever received a phone call with some unexpected bad news that would  change your life forever? Do you remember the exact day and time?  I have and I remember the day I received my diagnosis.  On September 24, 2013 – 5:30…

And Then I Stepped Up To The Podium And Told My Story

As you recall, I spoke at the LHON symposium last June in Pittsburgh in front of many people from the LHON community. The whole day was videoed so that anyone who didn’t make it to the symposium could benefit at a later time. Well, the time…