And Then I Stepped Up To The Podium And Told My Story
As you recall, I spoke at the LHON Symposium last June in Pittsburgh in front of many people from the LHON community. The whole day was videoed so that anyone who didn’t make it to the symposium could benefit at a later time. Well, the time is NOW! Over 7 hours of content are broken into 9 numbered sessions, so you can start with Part 1 and work your way through the day, or go directly to the session(s) of interest to you.
So grab your popcorn and have a seat… Ready??? I’m posting “Part 1 — Welcome and the LHON Journey” because… well, lets be honest, I’m in it!!! It’s GGB’s speaking debut! This is where I tell my journey so far. Click the video below to watch it (I pipe in at about 16:00).
Here is another one for your viewing pleasure! Four of my affected friends tell their stories! Part 2 – “the LHON Journey”
I can’t wait to attend next year and every year after that!!
2018 Update: If you’d like to view more videos from past LHON Conferences, please click here to get to the YouTube channel!
10 Comments on “And Then I Stepped Up To The Podium And Told My Story”
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Hello! Here is a little about me. I am a mom of two fantastic kids, group fitness instructor, transformational speaker, blogger, podcaster, and advocate in beautiful San Diego, CA. Oh, and as my website name would suggest, I am also legally blind. Yes, I’m a Girl Gone Blind — and I’m here to tell you all about it!
Girl Gone Blind 
MARIA….AGAIN WITH THE TEARS…THAT WAS AMAZING…THAT WAS A TOTALLY MARIA……. CHARMIN,G, WONDERFUL POSITIVE AND INFORMATIVE SPEECH……TONS OF HUMOR……YOU ARE SO WONDERFUL AND SO BRAVE…..LOVE TO YOU
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Thank you so much Auntie Myra! xox0 I
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again, you do nothing but inspire and YES, you got this!
love you tons girl gone blind!
kirb
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Thanks Kirby!! xoxo
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I am so freaking proud of you! You were fantastic!!!! Can’t wait to see more!!!
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Thank you dear friend! I appreciate you always being there for me! xoxo
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Maria, you are so inspiring and strong. My heart goes out to you with love and support.
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Thank you Christina! Miss you! xoxo
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Well done Maria! I’m going to start mentioning the mitochondrial connection in my human A & P classes to help spread the word. Keep up the good work! ~Gretchen
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Awe too bad I didn’t know you back then Maria. You were in my city, we could have connected and grabbed a bite.
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