What Does It Mean To Be Enough? | Mel Scott

When looking back on five years worth of blogs, there are just a few that still feel important for me to read over and over for myself. I think this one especially is worth revisiting. I changed the name because it applies to everyone.
What does it mean to “be enough?” How does it feel to “be enough?” How will we know when we have reached that blissful state of “enoughness?”

These questions have been churning in my brain consciously for years, and probably subconsciously all my life. Well, I have been pondering on it long enough. I have some ideas that might help sort it out.

To say, “I am enough” is a very different statement than, “I have enough.” We can quantify “having enough:” there is enough food, shelter, or whatever it is that is required. “Being enough” is a bit more allusive. It is a state of mind. To be willing to say, “I am enough” and truly believe it, even for an instant, allows for a feeling of inner spaciousness; a peaceful expansion of consciousness.

I could easily tell you at this point to do twenty affirmations everyday saying, “I am enough,” and eventually you will feel better. This absolutely can be an effective practice. I use it myself but I want to introduce another idea.

A few weeks ago, I had a conversation and the person said to me, “I am sad because I am not enough.” Usually I might have said something like, “Of course you are enough. Look at all the people you have helped and influenced over your lifetime.” There are a lot of dismissive remarks I could have made. This time however, what shot out of my mouth was, “You are right! You are not enough and you never will be, so get over it!” I felt kind of shocked when it spilled out of me, but I realized the truth of the statement immediately. How can any of us ever be “enough” when the To Do List is infinite? How can we be enough when we feel “less than” due to blindness, deafness, or a thousand other physical conditions, or when the size of our pants aren’t the size we have decided is the perfect one? How can we ever be enough when we measure ourselves bya super hero we have conjured up in our own minds? How can we be enough when the mark moves up as soon as we reach it?

We can’t! There is no way! Therefore, to be sad about not being enough means you will be sad about it the rest of your life. That does not work for me.

The way I see it is I can either drop the thought, “I am not enough” and even drop the thought “I am enough.” They really are not useful because a measurement is inherent in both statements. I propose we drop them both. Can you imagine that? You never have to be enough again and you never will feel sad again because you are not enough. “Being enough” is no longer a measurement that applies to us.

How does that feel?

For me, a whole world of guilt-free possibilities just opened up. So much inner space can be created if we get over “being enough.” Let it go and observe how you feel. Take it in and you might breathe easier.

*This blog was orugunally published on BlindAlive | by Mel Scott

19 Blind Blessings I’ll Be Bringing Into 2019

As the years go by, some of the blind blunders and battles that made me anxious, angry, or annoyed in the past have slowly converted into what I’m going to call “blind blessings”.

Personally, going blind in a matter of months was the farthest thing from a blessing. I can’t change my eyesight, but I’ve been able to change my mindset (for the most part) about this unexpected life. For example – I can’t drive which totally sucks and always will, but the blessing is that I get to spend more one on one time with friends and family when they drive me places. Such a better way to think about things. Right?

So, I got to thinking. There must be at least 19 of these blind blessing conversions I’ll be bringing, or dragging kicking and screaming, into 2019. Here is what I came up with – not in any particular order.

My 19 BLIND BLESSINGS

1. My remaining vision. I have most of my peripheral vision remaining – it’s not great, but I use every bit of it.

2. I am able to “see” people for who they are on the inside – their mind, heart, and soul tell me more about them than the color of their skin, choice of clothing or hairstyle ever will. Trust me, this can be good or bad for some peeps.

3. I have met some fantastic people inside and outside of the LHON and blind community. Many of them have become close friends and confidants.

4. Being recognized and given opportunities to speak about ways to support the blind, use and promote local assistive tech, and/or tell my story to large and small audiences — is amazing. Always an honor and a rapidly growing passion for me.

5. I can’t see the extra 20-ish-or so pounds I’ve packed on post vision loss in the mirror. A blessing and a curse.

6. I don’t see the nasty color of my fruit and veggie smoothie. I just drink the sh*t.

7. My friends can see when my wine glass is almost empty. Needless to say, my glass is rarely empty, and I don’t have to think about getting behind the wheel after one too many. 

8. Stemless wine glasses. Enough said. Perfect for #7.

9. Asking for help, or accepting help, isn’t as difficult as it used to be. It can feel a bit empowering.

10. I can tell the difference between peanut butter, plain, and peanut M&Ms by feel. Explains #5.

11. I can “blindly” cut a piece of cake that is a bit more than I should eat. Oops. Gimme a fork. Explains #5.

12. I’m an old dog who CAN learn new tricks. Assistive technology and Apps for the blind are better than ever – they all just take time to learn.

13. I can scroll through my emails and social media, text and make phone calls, plus lots of other stuff – on my iPhone/iPad even though I can’t see the screen.

14. I’m not obsessed with taking selfies. 

15. I rediscovered my creative side. I can create my own images and graphics on my computer with the use of magnification and  Canva.

 16. Spider? WHAT effing spider??

17. My white cane can get me a front row seat if I work it just right!

18. I can still see the color blue. Blue stemless wine glasses would be wonderful for #7.

and

19. My blog is, and continues to be successful. It gets shared all over the world by my awesome followers!!  They are the BEST!

So, there ya go. I know there are more than 19 “blind blessings” in my life – but I’m gonna stick to the – 19 into 2019 – theme here. I want to give a big thank you to all of you who follow and share my blog!! You guys are a huge blessing to me!! Wishing you good health, lotsa love, and heaps of happiness in 2019!! X ❤️ – Maria

What Is It Like To Be Blind At Christmas? | Tamara Gaudet

Christmas is my absolute, hands down favorite time of year.

Has been ever since I was a little girl. I would wait for Santa and hope he heard my Christmas wish. Then, growing up Christmas traditions continued and my love for this holiday deepened further. And now as a 44-year-old, I’m a proud, but pitiful knock-off for Mrs. Clause.

Usually, by December 1st, our home is all decked out. I put up the outdoor lights, although I don’t use a staple gun anymore. I decorate our tree, walls and windows. Hang pictures and hang stockings. But, with this year being such a tumultuous one for many of us, I’m a little behind.

In fact, my Christmas Spirit itself missed the first train…maybe even the second.

But then I realized we NEED the joy. We need the love. WE NEED CHRISTMAS! So, that means I was not going to miss the next train!

Christmas time is so beautiful. With all the sparkling lights, shiny bows, gift wrap and exquisite Christmas trees. It’s hard not to be in awe of it all.

So, when I was asked the question “How does a blind person enjoy Christmas?”, it made me think for a moment.

This Is How…

Do you hear what I hear?

Close your eyes and imagine for a moment nothing but the distant ring of winter bells. Maybe in a song or in the streets. I hear Angels.

Truly listen when you hear a Christmas choir or when children sing. I hear happiness.

Or how about when a gift is given? A gift of a smile, a hug, something desired from Santa or a hot plate of food. I hear gratitude.

Do you see what I see?

With just 1.5% vision, I am able to see the flickering of Christmas lights up close. The darker the room and brighter the lights, the happier I feel.

I also see my friends, family and community coming together to celebrate the holidays and each other. To share memories and make new ones. To give and to love and to “be.”

But most of all, what I see and hear at Christmas is the most beautiful thing of all. Love. It’s kind, generous and all forgiving. It’s honest and compassionate. It knows no limits and knows no fears.

So, how does a blind person enjoy Christmas? I actually hear, see and feel a lot during this magical time of year.

And, I didn’t even mention the delicious and festive food that makes it’s way out and on to my hips 😉

I hope you will allow the love and the joy to carry you through your holidays this year and every year to come. If you do, I promise it will be a beautiful gift for you and the people that surround you this Christmas.

Feel the magic. See the miracles. Bring the joy.

About The Author

Tamara Gaudet is a thought-provoking, motivational diversity speaker. Known for her authenticity, humor, moving storytelling, she delivers a unique perspective and a powerful message based on her own real-life experiences. Tamara’s mission is to create a space where all individuals feel accepted, respected, and valued.

What Is It Like To Be Blind At Christmas? was originally published on Besomebody.com on  December 4, 2017. 

Blind Reflections | Lynne Nicholson

Don’t Limit Yourself  | A Blind Reflection by Lynne Nicholson

Obstacles can seem insurmountable.

Two years ago, if you’d told me that I’d be making quilts on my sewing machine, I’d have thought you were crazy, as I had learned a month prior I was losing my sight – now I’m Blind Woman Sewing!

Two years ago, I thought my independence was gone and I would need help getting from A to B – now I’m Blind Woman Walking!

Two years ago, I thought I’d be a burden to my family but I still can babysit my grandson.
I thought my life would be sitting around waiting for people but I’m often out and about and even have started new interests including blind tennis – now I’m
Blind Woman Living Life To The Fullest!

Don’t let others limit you.
Don’t limit yourself.
There is always room to grow.

Via GGB Facebook – October 25, 2018

Photo description written by Lynne: A quilt in progress. There are hexagonal blocks made from equilateral triangles laid out on a bed to work out the final position on the quilt. Each hexagonal block is made from five triangles in a single autumnal print and one triangle made from plain navy fabric. There are a total of ten different autumnal prints in this embryo quilt. 

About Lynne

A cute illustrated picture of Lynne. She has blonde short hair a big smile and is waving. her hand as if to say Hello!Lynne Nicholson lives in the UK – in a place called Welwyn Garden City in the county of Hertfordshire. She was diagnosed with permanent sight loss at the age of 55, and was registered blind a year later.

I met Lynne thru my GGB Facebook page and she always has great things to contribute to GGB conversations, (like the above). She is fiercely independent and determined to live her life with passion, not pity.❤

 

 

 

17 Easy Ways To Make A Blind Person’s Day | A Slice Of Satire

I came across this little gem on Facebook with no author. I found out that it was originally published on Where’s Your Dog? |November 2015. It’s brilliant, sarcastic, and witty. I thought it deserved to be featured on my blog!

Now, who’s in the mood for a little sight loss satire and humor?

17 Easy Ways To Make A Blind Person’s Day | By Where’s Your Dog?

1. When introducing yourself, use loud, exaggerated speech. Since we’re blind, it’s safe to assume we’re a little dim, too.

2. Don’t speak directly to us. It’s always best to talk over our heads like we’re not there at all, especially if you are offering a service. Example: “What would she like to order?” Be sure to ignore our attempts to answer for ourselves.

3. Grab or otherwise manipulate our bodies whenever and wherever you deem necessary. For example, if you intuitively perceive that we’re going the wrong way (even if you haven’t asked where that is) just snatch the nearest limb and lead on, Macduff!

4. If you aren’t in a position to grab us, you can always shout instructions in the hope that we’ll know what you’re talking about. If we look baffled, just keep repeating the instructions in an increasingly frantic tone. We’ll clue in eventually.

5. Remind us often how grateful we should be that people are willing to provide accommodations for us. While it’s unlikely that we will ever, ever forget this for more than five minutes at a time, it’s a good idea to slam the thought home when we’re not expecting it. It builds character.

6. Stage loud conversations about us while we’re in the room, because we won’t hear. If we hear, it’s okay, because we won’t understand. If we understand, it’s okay, because we won’t care.

7. Keep all conversation firmly focused on blindness. If we try to interject by discussing our education or interests, just redirect us. We get carried away trying to be all normal, so it’s helpful to keep us on track!

8. Be sure to describe all the other blind people you’ve ever met, in extravagant detail. We couldn’t be more fascinated by that blind guy who skied, and that other blind guy who went to school with you, and that blind girl you met on the train once—the one with the cute puppy…

9. Make a habit of asking us why we’re “here”. If we’re on the bus, ask us why we’re out alone. If we’re at work, ask us how we got the job. If we’re in class, ask us why we’re in university. If we seem offended, ignore us: deep down inside, we really enjoy presumptuous interrogation!

10. Dispense advice about how we should live our lives; the less you know us, the more valuable your feedback will be. If you need a good starting point, you can begin by analyzing our mobility tool of choice (cane or dog) and emphatically demanding that we switch. We love that.

11. Involve yourself in our love lives, specifying exactly the type of person we should date and why. If you think we should date a sighted person because they’ll be able to take care of us, we’ll want to hear all about it. If you think we should date a blind person because we should “stick to our own kind” we will be all ears!

12. Give us things—money, coupons, whatever—because you pity us and want to make our day better. Don’t be phased by any apparent expressions of confusion. (“Oh, that’s just my gratitude face!”)

13. Stop us on the street and thank whomever we’re with for helping/taking care of/being so kind to us. It’s not as though we have real friends who genuinely enjoy our company. No: if we’re out with a sighted person, they are fulfilling a purely charitable role. They will appreciate your praise, and we will feel extra extra grateful!

14. Place your hands on us in any public place and pray. If we gently explain that we don’t want to be prayed for, rest assured that it’s just the secular cynicism doing the talking. When our sight is miraculously restored, you’ll be the first to know.

15. Make as many potentially dangerous practical jokes as you can think of. A few good ideas include warning us of imaginary obstacles (“Watch out for that tree-just kidding!”), concealing our possessions, and encouraging us to “find” you while you run gleefully around us in circles. These were a staple of primary school, and I treasure many pleasant memories from that era. Do me a favor, and bring back the nostalgia!

16. Refer to us as “that blind person” even after you know our names. Blindness is so integral to our identities that our names are really just decorative, so there’s no need to remember or use them. If we fail to answer to “Hey, blind girl/guy!” just keep trying. We’ll learn to love it.

17. Assume that our default status is “Help!” If we reassure you that we’re okay, thanks, don’t fall for it. Insisting upon rescuing us every time we cross paths places us into a position of dependence, which is exactly where we belong.

GGB NOTE:
Yes, this is written with sarcasm, ridiculousness, and funny exaggerations related to situations that blind people experience – much like some GGB blogs! I’m sure it wasn’t written to offend anyone. So, lighten up! xx

The Best Kind Of Help | Cane Adventures | Dr. Amy Kavanagh

After the great response to my last post “I’m Not A Fan Of Your Hands”, I wanted to feature this brilliant blog written by Dr. Amy Kavanagh to further educate others on the best kind of help for those with sight loss.

The Best Kind Of Help | Dr. Amy Kavanagh

Many of you will be familiar with my #JustAskDontGrab campaign. I share my experiences of people who grab, push, pull and generally touch me without my consent under the promise of offering ‘help’. Check out my Just Ask Don’t Grab Campaign page for more information.

Today I wanted to share the best practice, the helping heroes, the people who really did do a good thing and made a difference. Here are my top tips on how to offer help and some of my best examples! To find out Amy’s top tips, continue reading at Cane Adventures! 

If you want to read more from Amy on her blog, go to Cane Adventures

Check out Amy’s #JustAskDontGrab Campaign and be sure to follow her on Twitter – @BlondeHistorian

GGB Note:

Many people who are legally blind, including myself, appreciate those who want to help us. It is not any blogger’s intention to discourage anyone from offering to help a person with a disability. Feel free to ask, not grab – we like our independence and personal space just as much as anyone else! xx

I’m Not A Fan Of Your Hands

I’m becoming more and more aware of something some sighted people tend to do because I’m legally blind. I don’t think they even realize they do it. They probably don’t know just how annoying and uncomfortable it can be. It’s a “touchy” subject, but I suspect I’m not alone on this one. 

Ok. Let’s talk.

I’ve noticed that Some people feel the need to “poke” or “draw” on my arm, hand, or leg with their finger to further describe something during a conversation. 

Also, some people feel the need to grab and forcibly pull my hand (or hands) towards something so I will better understand where it is and/or what it feels like. 

And then, there are some people feel the need to grab me by the shoulders with both hands and spin me around to point me in the direction I asked to go.

For. the. love.

Why. 

It’s annoying and uncomfortable.

Seriously.

I have personal boundaries just like you.

Please use your words, not your hands.

Not to sound like a bitch or anything – but, didn’t your mother or kindergarten teacher tell you to “keep your grimy little hands to yourself”? It’s a simple concept and one that should be easy to understand. Especially as grown adults.

So, why you gotta use the hands?

I’m pretty sure there are at least a billion or so words in the english language to choose from. All you have to do is string a few of them together to form a sentence that describes a person, place, or thing, and speak. Have you heard of “audio description”? The key word there is “audio”.

When I was a young girl, my friends and I used to play a game. We would take turns drawing simple images with our finger on the back of each other’s shirt. One kid would have to guess what the image was as it was being drawn on their back. Hey, we didn’t have cell phones back then – so, we had to make up our own entertainment. If you grew up in the 70s – you get it, right? Anyway… We had to use our imagination and visualize the image the other person was drawing on us. Yep. Oodles of fun as a kid. But now, as an adult, not. so. much. I would prefer that you speak to me, not draw on me.

Since losing my vision, I’m the first one to reach out to touch and feel something. I’m like a naughty little toddler that has to touch everything! Just ask my kids after a trip to Target – they would agree! I use my hands to gather the tactile information I can not see. I might feel an object or the surface of something for size, shape or texture info. I might feel around on top of a table or countertop to find something – like a glass, a bowl, my phone, or a cork to a bottle of a fine cabernet, etc. etc. And you guys, I might have, just maybe, mistakenly felt up a live human or two. I mean, is it a human or a mannequin? The struggle is so damn real!

I need you to understand that my hands serve as my eyes. Notice how I use the word “MY’? Yeah. MY hands, not yours. Grabbing and putting my hands to place them somewhere or on something is not ok with me. Me, myself, and I, will use my own hands as I SEE fit. (No pun intended!) I would prefer that you speak to me, not man-HAND-el me.

And lastly, if I ask which way something is located, I want directions. Please suppress the urge to grab and spin my whole body around until I am facing the direction I want to go. I’m all for fun and games, but most likely this is not the time!! I would prefer that you speak to me, not spin me. If I’m not understanding you, then for sh*t sake, offer up your elbow and guide me!

Can you try to resist?

As always, I am so thankful that you all do what you feel you need to do to describe and show me the things I can not see. I really do. It is not my intention to discourage anyone from offering assistance to me, or to any other person with a disability. Nope. But. for. the. love… try to resist poking, drawing, grabbing, pulling, or spinning me for descriptive purposes. It’s usually not necessary, or appreciated without my consent. Please use your words. Lots of deliciously descriptive words. Because quite frankly my dear, I’m not a fan of your hands! 

P.S. I don’t speak for every legally blind person here. So, if you don’t mind the whole touchy-feely-pokey-grabbing-spinning thing — well, to each his own! xx

Blind Reflections | Dena Lacis

What Bothers Me The Most? | A Blind Reflection By Dena Lacis

Recently, my daughter asked me a question. She wanted to know what one thing bothers me the most since losing my vision. One thing? Is there just one thing? I thought about it and this is what we talked about.

Losing My Ability To Drive.

We talked about not being able to drive. Not being able to drive them, (my kids), to school, gymnastics, soccer, or whatever else strikes my fancy. I wish I could go to appointments or run my own errands based on MY schedule, instead of someone else’s day or the local bus schedule.

Losing My Ability To Read (Without Assistance).

We talked about not being able to read things. Not just books, but recipes, price tags, sizes, labels in department and grocery stores, or OTC and prescription bottles. Reading is a part of so many tasks in everyday life.

Lack Of Trust.

We talked about how people don’t always trust me. Can I be trusted about what outfit looks great? Sometimes. Can I be trusted to follow a recipe? Sometimes. Can I be trusted to arrange things in my house?  I say, Yes. Well, for the most part – I mean, it is MY house. And if I arrange things, I will know where the heck they are! I have so little control over my life. I want to control what I can.

Loss Of Control.

We talked about what really bothers me beyond the driving, reading, and trust. It’s the “loss of control” I feel. I can’t control being a diabetic, but I can control (to varying degrees of success) my blood sugar level. But, Lebers Hereditary Optic Neuropathy (LHON) leaves me no control over what I see. Sure, I can magnify everything, but that’s not me. And as a result, I can’t drive, and I can’t read without magnification, voiceover, an assistive technology app or device. And don’t even get me started on my color perception issues. That also adds to the lack of control.

So, it’s really not just one thing. I think the loss of my independence as a fully sighted person would sum it up. As that is what most often comes to mind.

About Dena

Dena is a wife and mother living in Jacksonville, North Carolina. She started losing her vision in August 2015, right about the time she was turning 40. After a very long medical mystery tour of doctors and specialists, she was finally diagnosed with LHON via a DNA blood test in April 2016.

 

 

What Does It Mean To Be Legally Blind? | Derek Daniel

Over the years, I have had to explain that I cannot see as well as other people. I use a variety of terms, such as blind, visually impaired, low vision and so forth. One that many people use is the phrase “legally blind.” People often seemed confused by this, so I thought I’d give an answer here today.

First of all, let me explain something: Most people assume that the word “blind” is very black and white. They think that you are either sighted, which means you see everything, or you are blind, which means you see black or nothing at all. This actually couldn’t be farther from the truth. In fact, most people who have vision issues, around 90%, have some usable vision remaining. Whether that is light perception, shadows or shapes, it is not simply “darkness.” So, to say I am blind does take a little more explanation.

Ok, so back to the “legally blind” thing. Here is the basic definition:

A person would be considered legally blind if their BEST EYE has an acuity of 20 over 200 or lower at its most correctable.

Ok, let’s break that down. Let’s say there is a person who has very poor vision in one eye but perfect vision in the other. Are they legally blind? No, since their best eye is better than 20 over 200 at its most correctable.  Another example is a person who has poor vision normally, but with glasses or contacts, it can be corrected to 20 over 20. Are they considered legally blind? No, since the correction brings them above the 20 over 200 barrier.

So, who is legally blind? Well, basically, anyone who can’t correct their vision in either or both eyes above 20 over 200. Some people might have a lot of usable vision while others have hardly any at all. However, they would both be considered legally blind.

I have heard many people say something like, “I’m legally blind without my glasses.” To them I would say, “Well, then you are not legally blind.” The term “legally” here implies that you are now eligible for certain benefits because of your limited vision. (One other thing I say that doesn’t always come across so kind is, “Did you drive here? Yes? Then you aren’t legally blind.”)

Now, how do you get to be “legally blind” if there is a distinction? Well, that takes a doctor writing a letter and saying that your visual acuity is below the line and could be considered legally blind. Typically, you have to show this letter to governmental agencies, certain services like guide dog organizations and so forth.

I think that about explains the basics of it. If someone is calling themselves legally blind, chances are they have enough of a vision issue that it affects there everyday life. For example, they usually can’t drive, they might have assistive technology and they may or may not use a white cane.

Here’s the important part of all of this: no matter what you say about yourself, you know your vision the best. I often like to tell people that I have a “visual disturbance” as I am a Star Wars fan. But, most likely, if you are telling someone you are legally blind, you’ll have to go into a deeper explanation as most don’t have a clue what that means. That is, of course, unless they just read this blog post!

This blog post (and featured image) was originally published on Life After Sight Loss.

GGB Note:
Derek Daniel is a good friend, and like myself, he is legally blind from Lebers Hereditary Optic Neuropathy – (LHON). He is also the creator of an incredible website full of great content!
Be sure to check out LifeAfterSightLoss.com for links to his popular podcast, various videos, and blogs!

Oh Momma | Molly Johnson

My daughter, Molly, has a way with words, thoughts, and feelings. When she puts them together to create a heartfelt blog – comparing me to glitter – it’s priceless. ❤️ Love my sweet Molly Mo!

The crazy life of Molly J

Oh momma how I love you. You’re my best friend and my closest confidant. My momma is like glitter, alway shining bright but you can never seem to get rid of her. She is brave and fearlessly bold in how she loves others. She may be blind but she sees me in a way no one else can, it’s kinda maria and molly thing. Oh, how my momma is gorgeous and a dancing queen. She may even be a better dancer than me, but I’ll rarely admit that. My momma is funny as hell! Yes, I’m finally admitting it, even when I am having my darkest days she will always be the light who illuminates my heart. When she isn’t at home it just feels like a house. Oh, my momma loves me so much as do I love her. This blog is somewhat out of the blue, but it…

View original post 34 more words

Blindness, Binoculars, And A Beautiful Bride

Recently, there was a photo shared on social media that caught my attention.

The photo was posted by Shannon Elliott. It captured a special moment at her brother Brandon’s wedding. The moment when Brandon looks down the aisle at his beautiful bride. He wanted to see more than a foggy blur, which meant he had to put away his pride. You see, Brandon is affected by LHON and is legally blind, so he needed a little assistance to see her beauty through his own eyes.

In the photo, Brandon, a very handsome groom, is holding a pair of binoculars up to his eyes. The smile on his face speaks a thousand words!! Below is what Shannon wrote about the photo.

“Just wanted to share this photo with you all. ❤️ For those of you that don’t know… my brother went blind and lost all of his central vision in May of 2016. For the longest time, he was not comfortable talking about what had happened to him, not comfortable asking for help from people, not comfortable using visually impaired tools to help him see (especially in front of people), etc.

On April 14, 2018 he took a pair of binoculars down the aisle with him so he could “see” his bride walk down the aisle. 😭 Be still my heart. ❤️
I have never been so proud of an individual before. You continue to show me that the positives outweigh the negatives. You continue to show me to never give up. I wish I could put into words how much you mean to me and how thankful I am God chose me to be your little sister.
Be sure to visit our website: www.howhesees.org
I have limited VI51ON (vision) bracelets left in all sizes. If you would like to order one to support LHON research, click here! My goal is to send the biggest check I can to The LHON Project/UMDF at the end of November. Thank you for sharing my brother Brandon’s story. ❤️” – Shannon’s Facebook Post | 9/29/2018

Omg! Don’t you just love that!! It gave me all the feels! One thing is for sure, I will be using some fancy shmancy binoculars at my kid’s weddings!! Yup. They work pretty well for our type of central vision loss.

Shannon is such a wonderful sister — so be sure to check out her website! You can read Brandon’s story here — How He Sees – A Sister’s Insight Into Her Brother’s Sight Loss | Shannon Elliott (May 2018)


“Now I’ll Guide You” – The Meaning Behind Her Tattoo

 

My daughter Molly had just turned 14 years old back in September 2013. Her only concerns were her friends and enjoying her first year of high school. All was good until life threw “your mom is going blind” into the middle of her teenage world.

Yeah. It was not an easy time for her. Molly and I have had our share of sad, angry, and “life is so unfair” conversations about LHON and my vision loss. With lotsa laughter and a tonah tears, we’ve managed to get through most of it unscathed.

Fast forward 5 years.

Image: A photo of my daughter Molly and I,Molly is now 19, and one of the most resilient, strong, and compassionate young women I know. Is it because of what she has gone through? Adjusting to a blind mom? Maybe. Honestly, I don’t know too many young girls who have had to cope with their mother going blind in a matter of months. It was a game-changer, to say the least! Molly definitely had to grow up faster than most of her peers.

You may have read my recent blog titled, “Empowering My Invisible Disability With A Touch Of Ink”, where I talk about my first tattoo. What I did not mention, was this.

As I was getting my tattoo done, Molly was one chair over from me getting her third tattoo done. Another mother-daughter moment for the books right there!

She recently posted a photo of her tattoo on social media and this is what she wrote.

“Five years ago, on September 24, 2013, my mom – aka my world – was diagnosed with a rare disease which deemed her legally blind. Sighted or not, you’re amazing and still funny as hell! Thanks for guiding me when I was young. Now I’ll guide you, not into poles, and always tell you where the curbs are. I love you more than words could ever say! ❤️ mhj forever.” | 9/24/2018

So touching and sweet! Right? She is a beauty and a blessing to me! Oh, my Molly Mo – I love her so!

Tattoo Description:

The tattoo is in black ink and located on the inside of her upper right arm. In the center of the design is a simple circular compass. Along one side of the compass is the date of my LHON diagnosis, “Sept. 24, 2013”. On the opposite edge of the compass are my initials, “M.H.J.” – Which also happens to be her initials too. Surrounding the compass, are large wildflowers and sprigs of lavender. They were artistically shaded to give the flowers depth and detail. It’s amazing and so meaningful!! I LOVE IT!

Molly’s tattoo was done at SD Tattoo | San Diego, CA

Check out another blog I featured by Molly:

My Mom Went Blind And My Life Began To Unwind