"B" is for…..?

 

photoI LOVE THIS! 

I just got a gift from a dear friend. It’s a beautiful silver bracelet with a charm that has a little letter “B” on it. What does that “B” stand for? … No…NOT the B word that rhymes with ”witch”!  Sheeesh!

She knew I was going to speak at the UMDF/ LHON Program & Symposium this week and thought I could wear it to remind myself to always be “Brave”! 

There will be other people speaking about their LHON journeys on several panels that I will be moderating throughout the day. Exciting! I have talked to all of them on the phone and I can’t wait to meet everyone! We come from different backgrounds, we come from different places, and we have different lives living with something we all share.  LHON.  When you or a loved one is given this unexpected life….”B” is for Brave. 

B is for brave. It’s about welcoming the blind turn and possibility that there’s no such thing as coincidence, and that empathy is incredibly sexy, and that its never too late to pick up a guitar or a paintbrush or make an amend or to make a new friend. Love this life, ‘cuz it could go away any second.” 

imagesThank you for your 14 years of friendship Julia Kitts! x0 I love the bracelet and the message that came with it. I appreciate my family & friend’s support in getting ready for this trip! … Okay, enough GGB blogging…. I gotta finish pack-a-lackin’ for Pittsburgh! Woo Hoo! 

 

 

4 Comments on “"B" is for…..?

  1. Thank you for sharing and have a great time in Pittsburg. Looking forward to hearing from you upon your return. It’s so refreshing to read such honesty instead of my daily struggle w/a husband who has LHON and is so miserable about his plight.

    Keep the positive vibes coming!

    Like

    • A perfect choice of the gift from your friend. You are BRAVE Maria!
      I will be thinking of you all day as you moderate the panels and connect with each person sharing , with you , their lives with LHON . I send my love to you and to Chris! Xoxox Lee

      Like

  2. A perfect choice of the gift from your friend. You are BRAVE Maria!
    I will be thinking of you all day as you moderate the panels and connect with each person sharing , with you , their lives with LHON . I send my love to you and to Chris! Xoxox Lee

    Like

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