Truth is…. My Life is not a total loss!

Image is a cupcake with two candles in it celebrating my second blank birthday!“Birthdays are good for your health. The more birthdays you have, the longer you live.”  Good one! Right?!?

Well, TODAY’ is another birthday for me. It’s also my 2nd blind birthday. I really can’t believe it’s been almost 2 years since I was diagnosed with LHON and became legally blind. It’s been a long 2 years, but, life is slowly getting better. Thanks to the support and inspiration I have received along the way.

So I’m turning 52 today, hard to believe I know, and I got to thinking about what I’ve experienced over the last year. Let’s see, I am still learning skills for independence and adjusting to doing things differently. I don’t think the “adjustment” to this blind thing will ever end! Some adjustments have been purely mental, and some just physical. Some days have been easy–peazy and some were incredibly difficult. Whatever the situation or challenge might be, it seems I manage to pick up a few more pieces of me.

What else? I cried less and laughed more, I conquered some fears, gained more confidence, and nailed a few more blind girl skills. I’ve met some great people who live with LHON, or another type of vision loss. These folks inspire me, and continually demonstrate that having vision loss doesn’t mean you’re a total loss.

Now, I’ve already written about a lot of my experiences in previous blogs, so I’m not going to blab on about all that crazy shit again. Whaaa? YOU haven’t read about any of them? You better click on “Maria’s archives” right now, and catch the hell up on my business! Anyway… Many of this past year’s moments have helped me believe, and reinforce, the truth. Truth is… my vision loss doesn’t mean I’m a total loss!  I AM able to be a valuable part of this life. You know what they say…”The truth will set you free”! Set. you. fucking. free!!

Wow. This realization gave me back some confidence and control. My life wasn’t lost, It was just buried by mental doom & gloom. So maybe I can’t drive, make perfect pinterest cupcakes, or paint my fingernails. Are these tasks really that important in the long run? Well shit, driving is pretty important and I will always miss it, but, there ARE other really important things I can still do. I can listen, talk…a lot, teach, laugh, support, love, and live. Any person going through vision loss still has all those gifts. Truth is… Life isn’t a total loss because we were hit with LHON or another type of blindness. We need to believe that for our own sanity! Every damn day!

Thank you to everyone who has been a part of my life over the last 2 years! You have inspired, taught, supported and helped me believe the truth. I am not a total loss so don’t send me to the junkyard quite yet!!  This unexpected life will continue with more better days and birthdays!! NOW, where’s my damn cupcake??? ♥️ xx

2 Comments on “Truth is…. My Life is not a total loss!

  1. Wish I was there to also eat birthday cake with you Maria. Thank you for your friendship and your kind words each time we talk, cry or laugh together…. This past year getting to know you and finally meeting each other face to face – well sort of a pun on words has meant more to me then you will ever realize. So thank you from the bottom of my heart and perhaps one day we can celebrate our birthdays together too…
    All the best to you always and forever. Stay strong and positive and somehow life does continue on for us. My dear LHON sister.
    Take care and again a very happy birthday to you Maria.


  2. Happy Birthday! You are an inspiration to may, keep up those blogs and I wish you much happiness on this day and all days,


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