Being diagnosed with a rare disease is often a bolt from the blue, and while each person’s journey is different, there are common challenges that bind patient communities together. Over the last few months, our Living with LHON features has looked at the individual stories… Continue Reading “Living With LHON: Individual Struggles And Common Challenges Of Hereditary Vision Loss”
I am sitting here with a package of chile-lime mango slices and a cold Stella Artois beer. What motivated me to put myself at risk for heartburn and indigestion with this dicey dietary decision? My Lyft ride home tonight. That’s what. Yep. My evening… Continue Reading “I Didn’t Expect My Driver To Admit This To Me”
Will Seeking Compassion And Providing Education About My Sight Loss Ever End? | A Blind Reflection By Chrissy Terry “This is my long Facebook post from 2 years ago (2017). Every single word is still very true today. We are still seeking compassion and… Continue Reading “Blind Reflections | Chrissy Terry”