Tag: LHON

LHON – I Won’t Forget The Day We Met

On September 24, 2013, I met you and you changed my life. My phone rang. I was a bit annoyed because I was getting ready to go out for the night. I did not have time for any chit-chat. I looked at my phone…

Empowering My Invisible Disability With A Touch Of Ink

There are many types of invisible disabilities. They are conditions I suspect many people would like to forget – even if it was just for a day. Unfortunately, that’s usually not a choice. Disabilities, seen or unseen, often come with unwanted physical and emotional…

Simple Strategies For Responding To Comments About Your Vision Loss

People say the darndest things, don’t they? Do you ever wonder why family, friends, or even complete strangers say the things they do about you and your vision loss? You know, things that make you go “Hmmmm”. Well, chances are, they’re just trying to…

GGB Mini | Today Is My 5th Blind Birthday – Here Are 5 Things I’ve Figured Out Along The Way

Today is my 55th birthday and it’s also my 5th blind birthday. I’ve learned many, many things about myself and the blind world after becoming legally blind 5 years ago. I had every intention of writing a big, long, detailed blog about it. Yep….

Blind Reflections | Alison Fordham

My Tribute To My Mom | A Blind Reflection By Alison Fordham In 2016, my Mom lost her vision. First in one eye, and then the other. After endless appointments, testing, and waiting many months, she was diagnosed with LHON. She is one of…

I’m A Bad _______ – But It’s Not Because I’m Blind! | Blind Beader

I don’t know what it is, but I run across many people in my daily life who assume that blind people are super dependent on others for every little life task, or can do anything and everything extraordinarily well.  To muddy the waters even…

Are Fireworks Worth My Time – Now That I’m Legally Blind?

After the Fourth of July celebration here in the states, someone said to me, “You know, if I couldn’t see the fireworks show, I probably wouldn’t go. Is it hard for you to sit there while everyone else watches the fireworks?”. I said, “Well,…

Staying In The Fight For My Life Without Sight.

There’s been a lot of talk about mental health in the news lately. From celebrity deaths to kids who take guns to school with no plans to come out alive. You can’t help but wonder what was going through their minds. How did they…

How He Sees – A Sister's Insight Into Her Brother's Sight Loss | Shannon Elliott

    Imagine.     Imagine living your life normally and then all of a sudden losing your vision.      Imagine being 25, living on your own, working at your dream job, being seven hours away from your family and becoming legally blind. …

Blind Reflections | Jonathan Dator

Adventures In Being Legally Blind | A Blind Reflection By Jonathan Dator This winter I was up in Boston at the Copley Place Mall shopping for a leather jacket. When I found one I really liked the employee working at the store said, “But….that’s…

Doctor, I’m Going Blind. Why Won’t You Talk To Me? | Eleanor Lew

Years ago, when my nephew was a toddler, I was crouching in the kitchen, searching for something in the floor cabinet. After finding what I needed, I quickly straightened and cracked the top of my head on the opened upper cabinet door. Ouch! My little nephew…

5 Benefits Of Sharing Your Sight Loss Story

So, you’re legally blind. Were you born blind or did you lose sight at a later age? Is it a big deal in your life, or Is it easy to ignore? Has sight loss made you a stronger person? Have you broken down barriers so…