Being 14 years old already sucks enough or at least I thought it did. Then throw in your mom going blind within a matter of 8 months…it was more than this young teenager wanted to deal with. Adding that into my melting pot of… Continue Reading “My Mom Went Blind and My Life Began To Unwind | Molly Johnson”
Who is Girl Gone Blind? How did I get to this point? What’s my deal? Have you ever heard my story? T. Reid of “Reid My Mind” really captured what it was like to unexpectedly lose my vision in this interview on November 30,… Continue Reading “Who is Girl Gone Blind?”
Starting in 2013, there has been an annual LHON Conference held in conjunction with the United Mitochondrial Disease Foundation’s “Mitochondrial Medicine” Symposium. With much thanks to Lissa Poincenot for bringing me on as her trusty sidekick in 2014, I help plan and organize this… Continue Reading “The Emotional Impact of Going Blind and Living with LHON”
Have you ever received a phone call with some unexpected bad news that changed your life forever? Do you remember the exact day and time? I have, and I remember the day and time I received my diagnosis. On September 24, 2013 –… Continue Reading “Do You Remember The Day You Got Your Diagnosis?”
So, THAT four letter word has come up. I had the “CANE” chat at my last doctor’s appointment. Of course, my mind started the fight immediately …. Hold UP! I don’t need a cane, I don’t want to carry a cane, I’m not THAT blind!… Continue Reading “That four letter word… C. A. N. E!”
There are days that I don’t think about being blind. There are days when all I think about is being blind. Today is a day that all I think about is being blind…and It makes me incredibly sad. Today is a day I feel… Continue Reading “Some Days Are Harder Than Others”