Tag: LHON

8 Things You Shouldn’t Assume About A Blind Person At Social Gatherings

I understand it’s hard to know how to accommodate or communicate with someone who has little to no vision. I didn’t know about any of this “blind etiquette” stuff until I lost much of my own vision 3 years ago. I’ve always enjoyed going… Continue Reading “8 Things You Shouldn’t Assume About A Blind Person At Social Gatherings”

I Didn't Know Bottles Could Talk

SHUT the front door! Are you kidding me? WHY has no one told me about this?? I have been legally blind for almost 3 years and I’m just now finding out about these! This blind find needs to be shared!! What the hell am I… Continue Reading “I Didn't Know Bottles Could Talk”

The Emotional Impact of Going Blind and Living with LHON

Starting in 2013, there has been an annual LHON Conference held in conjunction with the United Mitochondrial Disease Foundation’s “Mitochondrial Medicine” Symposium. With much thanks to Lissa Poincenot for bringing me on as her trusty sidekick in 2014, I help plan and organize this… Continue Reading “The Emotional Impact of Going Blind and Living with LHON”

I Summon Strangers To Give Me Rides

As children, our parents told us to never get in a car with a stranger. Even if they promise you candy and cute puppies…you don’t get in the car. Well, I have a confession. I get in cars with strangers. Yep. They know what… Continue Reading “I Summon Strangers To Give Me Rides”

You Can’t Replace A Face

I miss my family and friends so much. They didn’t go anywhere…. In fact, I see many of them everyday. There IS something different about them. There IS something different about me. The difference is that I’m legally blind and their faces do not… Continue Reading “You Can’t Replace A Face”

GGB Mini | I Don’t Like Missing the Show

I went to a concert last night. I was looking forward to seeing one of my long time favorite female artist! I love listening to live music and watching action on stage. Who doesn’t love the WHOLE concert entertainment experience!?! It’s what we pay for! Right?… Continue Reading “GGB Mini | I Don’t Like Missing the Show”

It Was Time For New Blind Skills And Kitchen Thrills

It’s no secret. I’m not a very good cook. Actually, I’m a horrible cook. And NO, it’s not because I’m blind. I just seriously suck at cooking. Perhaps it’s because I’ve just never had any love for the art of cooking. Paper goods or drinks are… Continue Reading “It Was Time For New Blind Skills And Kitchen Thrills”

Do You Remember The Day You Got Your Diagnosis?

  Have you ever received a phone call with some unexpected bad news that changed your life forever? Do you remember the exact day and time?  I have, and I remember the day and time I received my diagnosis.  On September 24, 2013 –… Continue Reading “Do You Remember The Day You Got Your Diagnosis?”

Finding Pieces Of My Life A Year After Vision Loss

  TODAY is my birthday. There were times I wasn’t sure I would, or wanted to, make it here. Somehow, with a lot of therapy, I am here. I made it to my first BLIND birthday. That makes me a little sad and I’ve… Continue Reading “Finding Pieces Of My Life A Year After Vision Loss”

Sight Loss Can Kiss My Lash!

Every girl wants to be able to look and feel her best. Even us blind girls! We still want a little fancy, some fantastic, and a whole lotta fabulous for ourselves! I might be speaking for only a few of us blind beauties or… Continue Reading “Sight Loss Can Kiss My Lash!”