Category: Mental Health Matters

Stepping Out Of My Blind Comfort Zone

I’ve cried enough tears over the loss of my vision to end the drought in California. The shackles of sadness that held me to the ground as I grieved were rarely unlocked. When I thought about ALL the fears I had, and still have, it…

The Emotional Impact of Going Blind and Living with LHON

Starting in 2013, there has been an annual LHON Conference held in conjunction with the United Mitochondrial Disease Foundation’s “Mitochondrial Medicine” Symposium. With much thanks to Lissa Poincenot for bringing me on as her trusty sidekick in 2014, I help plan and organize this…

Truth is…. My Life is not a total loss!

“Birthdays are good for your health. The more birthdays you have, the longer you live.”  Good one! Right?!? Well, TODAY’ is another birthday for me. It’s also my 2nd blind birthday. I really can’t believe it’s been almost 2 years since I was diagnosed…

I took a chance and told the world

One year ago today, I told the world the real truth about my vision loss. One year ago today, I told the world about being recently diagnosed with LHON – Lebers Hereditary Optic Neuropathy.    One year ago today, my blog was born!   Happy…

Where is the joy?

Have you heard the phrase ”The joy is in the Journey”?  I heard it the other day, and my first thought was… I don’t get it. My next thought was… Where is the “joy” in my journey?  How do I find the “joy” in learning to live…

Do You Remember The Day You Got Your Diagnosis?

  Have you ever received a phone call with some unexpected bad news that changed your life forever? Do you remember the exact day and time?  I have, and I remember the day and time I received my diagnosis.  On September 24, 2013 –…

Finding Pieces Of My Life A Year After Vision Loss

  TODAY is my birthday. There were times I wasn’t sure I would, or wanted to, make it here. Somehow, with a lot of therapy, I am here. I made it to my first BLIND birthday. That makes me a little sad and I’ve…