Category: Real Talk

It Was Time For New Blind Skills And Kitchen Thrills

It’s no secret. I’m not a very good cook. Actually, I’m a horrible cook. And NO, it’s not because I’m blind. I just seriously suck at cooking. Perhaps it’s because I’ve just never had any love for the art of cooking. Paper goods or drinks are… Continue Reading “It Was Time For New Blind Skills And Kitchen Thrills”

Another one rides the bus!

I have a valid drivers license and a car. I have LHON and I’m legally blind. Soooo, the license and car really don’t do me any good, because I can’t drive. Well, wait… the license is a great form of ID and allows me to… Continue Reading “Another one rides the bus!”

Doing more than you have to!

“The broadest, and maybe the most meaningful definition of volunteering:  Doing more than you have to because you want to, in a cause you consider good.”  ~Ivan Scheier Volunteering is something I have always done, as have many of my friends and family members.… Continue Reading “Doing more than you have to!”

Say what?? I didn't say THAT!

Fortunate. Fantastic. Frustrating. Fail. These are words I would use to describe my dictation experience over the last year. While I work on the typing skillzz, my e-mails, text messages, social media posts, AND this bomb-diggity blog are currently created by dictation, along with… Continue Reading “Say what?? I didn't say THAT!”

The Show Must Go On For This Band Mom

This is my 7th year as a high school “Band Mom”. I have supported and watched my kids practice, perform, and compete countless times in our school’s award-winning marching band. This year, because of my vision loss, I hear the music and see nothing… Continue Reading “The Show Must Go On For This Band Mom”

Halloween Fun & Friendship

A photo of My two girlfriends, Ursula and Robin, and myself, Dressed up as the "three blind mice". We were a hit!!!

  I don’t normally put a lot of thought into dressing up for Halloween activities.  I may throw together my “80s aerobics instructor” to teach a fitness class IF it happens to land on Halloween.  But, if I have a really creative costume idea…… Continue Reading “Halloween Fun & Friendship”

It was NOT on the List!

Have you gone shopping and ended up with 2, 3, or 10 other things in your cart that were NOT on your list? You know….things you don’t need, but, haaaave to have! What?!? You’ve never done that? Bullshit. yes. you. have. Since losing much… Continue Reading “It was NOT on the List!”

Would I Want To See How The Years Have Treated Me?

Things that make you go “Hmmmmmm……..”  I had a weird question come to mind the other day as I was cleaning the mirrors in my bathroom. The first question was… “Why the hell am I cleaning these mirrors, I can’t even see myself!” …that’s not… Continue Reading “Would I Want To See How The Years Have Treated Me?”

Do You Remember The Day You Got Your Diagnosis?

  Have you ever received a phone call with some unexpected bad news that changed your life forever? Do you remember the exact day and time?  I have, and I remember the day and time I received my diagnosis.  On September 24, 2013 –… Continue Reading “Do You Remember The Day You Got Your Diagnosis?”

And Then I Stepped Up To The Podium And Told My Story

As you recall, I spoke at the LHON Symposium last June in Pittsburgh in front of many people from the LHON community. The whole day was videoed so that anyone who didn’t make it to the symposium could benefit at a later time. Well, the time… Continue Reading “And Then I Stepped Up To The Podium And Told My Story”