Tag: sight loss

Things I Didn’t Want To Hear In The Early Stages Of My Vision Loss

You find out that a friend or family member was just diagnosed with a condition that causes permanent vision loss. They have been told there is no current treatment or cure. They may be in crisis, totally devastated, or in shock and denial by… Continue Reading “Things I Didn’t Want To Hear In The Early Stages Of My Vision Loss”

What Is A CCTV And How Does It Help Me To See

What is that big computer screen thingamajig set up on your table?”  That’s what they ask. “It’s one of the most important pieces of visual assistive devices in my house. It helps me to see!”  That’s what I say. So what is it? It’s… Continue Reading “What Is A CCTV And How Does It Help Me To See”

There's More To A Person Than Meets My Eyes

I get asked a lot of questions about what I can, (or can’t), see. It’s okay… I don’t mind. One question I’ve been asked is “if you’re looking right at me, what can you see?” To answer, I go into the usual spiel and explain… Continue Reading “There's More To A Person Than Meets My Eyes”

What's The Good, The Bad, and The Not So Nifty About Going Blind at 50?

So, what’s the good, the bad, and the not so nifty about going blind at 50? Oh, I CAN tell you! How much time do you have? An hour, or two, or twenty? Ha ha! Well, last week I spoke with Tara Briggs, the… Continue Reading “What's The Good, The Bad, and The Not So Nifty About Going Blind at 50?”

Thoughts For My Child Who Now Has a Blind Parent

For my child who drives to pick up their siblings because I can’t drive. For my child who may need to arrange for a ride from a friend because I can’t give them one. For my child who says “curb!” without even realizing it when walking… Continue Reading “Thoughts For My Child Who Now Has a Blind Parent”

The Emotional Impact of Going Blind and Living with LHON

Starting in 2013, there has been an annual LHON Conference held in conjunction with the United Mitochondrial Disease Foundation’s “Mitochondrial Medicine” Symposium. With much thanks to Lissa Poincenot for bringing me on as her trusty sidekick in 2014, I help plan and organize this… Continue Reading “The Emotional Impact of Going Blind and Living with LHON”

Finding Pieces Of My Life A Year After Vision Loss

  TODAY is my birthday. There were times I wasn’t sure I would, or wanted to, make it here. Somehow, with a lot of therapy, I am here. I made it to my first BLIND birthday. That makes me a little sad and I’ve… Continue Reading “Finding Pieces Of My Life A Year After Vision Loss”

Sight Loss Can Kiss My Lash!

Every girl wants to be able to look and feel her best. Even us blind girls! We still want a little fancy, some fantastic, and a whole lotta fabulous for ourselves! I might be speaking for only a few of us blind beauties or… Continue Reading “Sight Loss Can Kiss My Lash!”

I Do It More Than Your Average Girl

  There are a lot of frustrations in life. But let me tell you…. It goes to a whole ‘nother level when you have to adjust to an unexpected life.  A blind life. I got a list of frustrations going in my pretty little… Continue Reading “I Do It More Than Your Average Girl”